I was gonna make a post for International Day of People with a disability #IDPWD but then I felt terrible about having a disability and so I didn’t.
The truth is I still don’t feel good about having a disability, I hate having a disability and I honestly can’t find anything inspiring to say about it and so I’m not going too.
These photos are some of the realities of having a disability and the reality is that they all suck. The food sucks, the fact my mum has dozens of photos of me growing up standing next to the same wall at the hospital in Sydney during my 3 monthly checks to see if I needed surgery or if I might die sucks. Nurses who can’t place a cannula in the first six attempts suck, near 40 degree temperatures while doing a quick clean of your house before going to the hospital just incase you don’t make it home leaving your family to have to clean your gross house sucks, foot surgery really sucks, those days you can’t get out of bed suck.
These are some things that people with disabilities do on a regular to daily basis. We don’t talk to them out of fear of being shunned or dismissed with phrases like “Well it couldn’t be that bad” or a person rolling their eyes, when your answer to “What did you do today?” is “I couldn’t do anything today.”
The realities of being disabled sometimes aren’t meant to be courageous or inspiring or positive. Sometimes they’re just gross, boring and very lonely and that’s okay.
Being a person with a disability sucks sometimes and I don’t think it should be hidden in order to make others feel more comfortable, I do this shit every single day of my life.